“I can’t walk far these days, and when I do I use two walking sticks and I can be in meetings and my speech comes to a grinding halt.
“Another significant feature of Kennedy’s is fatigue so by the end of the day it really fatigues me – even just preparing a meal is too difficult.”
Unlike motor neurone disease, however, it is possible to definitively diagnose Kennedy’s disease with a blood test.
“I think it is often missed or misdiagnosed because of lack of awareness, that’s why it’s extremely important awareness is raised,” Kim explained.
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